The Australian Chapter of BDSRA
Health Professional Battens Project
Given the rarity of Batten Disease, we recognize that for people working with people who have Batten Disease and their families, it can feel overwhelming and like there is a lack of information or support. For... Read More
National Batten Disease Awareness Day
Most new parents will tell you how much they anticipate positive news regarding their child’s health from the very first ultrasound of their unborn foetus to the months following the birth of their new arrival... Read More
The Batten Disease Association is an organisation dedicated to improving the well-being of patients and families suffering from Batten disease, a severe and progressive inherited neurological disorder that primarily affects children and young persons.  It is one of a group of about 50 disorders collectively known as lysosomal storage disorders.  Batten disease primarily affects brain function, leading to the loss of learned skills such as walking, talking and feeding, behavioral problems such... Read More
Batten disease (Neuronal Ceroid Lipofuscinoses) is an inherited disorder of the nervous system that usually manifests itself in childhood. Batten disease is named after the British paediatrician who first described it in 1903. It is one of a group of disorders called neuronal ceroid lipofuscinoses (or NCLs).  Although Batten disease is the juvenile form of NCL, most doctors use the same term to describe all forms of NCL. Early symptoms of Batten disease (or NCL) usually appear in childhood when... Read More
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