The Australian Chapter of BDSRA
This year has held many challenges, positive connections, inspiring acts and memorable moments.  This issue is dedicated to the many who supported our charity in these past 6 months.  We will remember at... Read More
Battens in Australia had a pro-active period since our last issue - involving the National Awareness Day on 31st March, the Royals visit which included two of our families in a special meeting and an ABC TV... Read More
The Batten Disease Association is an organisation dedicated to improving the well-being of patients and families suffering from Batten disease, a severe and progressive inherited neurological disorder that primarily affects children and young persons.  It is one of a group of about 50 disorders collectively known as lysosomal storage disorders.  Batten disease primarily affects brain function, leading to the loss of learned skills such as walking, talking and feeding, behavioral problems such... Read More
Batten disease (Neuronal Ceroid Lipofuscinoses) is an inherited disorder of the nervous system that usually manifests itself in childhood. Batten disease is named after the British paediatrician who first described it in 1903. It is one of a group of disorders called neuronal ceroid lipofuscinoses (or NCLs).  Although Batten disease is the juvenile form of NCL, most doctors use the same term to describe all forms of NCL. Early symptoms of Batten disease (or NCL) usually appear in childhood when... Read More