The Australian Chapter of BDSRA
This National Day allows communities, members and friends to unite in fundraising and raising awareness by reaching out to the public.  This day nominated by the Australian Chapter, incorporates many events... Read More
The BDSRA has had a change of face with a new logo.  As most of our literature was newly printed last year, you may see the ’old’ and the ’new’ in 2014.   Please get behind the National Batten Disease... Read More
The Batten Disease Association is an organisation dedicated to improving the well-being of patients and families suffering from Batten disease, a severe and progressive inherited neurological disorder that primarily affects children and young persons.  It is one of a group of about 50 disorders collectively known as lysosomal storage disorders.  Batten disease primarily affects brain function, leading to the loss of learned skills such as walking, talking and feeding, behavioral problems such... Read More
Batten disease (Neuronal Ceroid Lipofuscinoses) is an inherited disorder of the nervous system that usually manifests itself in childhood. Batten disease is named after the British paediatrician who first described it in 1903. It is one of a group of disorders called neuronal ceroid lipofuscinoses (or NCLs).  Although Batten disease is the juvenile form of NCL, most doctors use the same term to describe all forms of NCL. Early symptoms of Batten disease (or NCL) usually appear in childhood when... Read More