The Australian Chapter of BDSRA
Melbourne Moomba festival has highlighted batten disease in a huge way.... On a big screen on the Yarra River in front of 1000s and 1000s of people, screening an ad twice an hour ALL weekend over the 6th to... Read More
Parents are the advocates for sharing our stories to educate the world about Battens.  Here is a special one by the Murchison family via  “Real stories made by real people from all around Australia”, click... Read More
The Batten Disease Association is an organisation dedicated to improving the well-being of patients and families suffering from Batten disease, a severe and progressive inherited neurological disorder that primarily affects children and young persons.  It is one of a group of about 50 disorders collectively known as lysosomal storage disorders.  Batten disease primarily affects brain function, leading to the loss of learned skills such as walking, talking and feeding, behavioral problems such... Read More
Batten disease (Neuronal Ceroid Lipofuscinoses) is an inherited disorder of the nervous system that usually manifests itself in childhood. Batten disease is named after the British paediatrician who first described it in 1903. It is one of a group of disorders called neuronal ceroid lipofuscinoses (or NCLs).  Although Batten disease is the juvenile form of NCL, most doctors use the same term to describe all forms of NCL. Early symptoms of Batten disease (or NCL) usually appear in childhood when... Read More