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Australian Chapter of Batten Disease Support and Research Association Inc.

Contact Information

A Message can be sent to us here, and we will get back to you at our earliest.

Alternatively you can find a contact person listed below for particular enquiries and contact them by their direct emails.

Australian Chapter of Batten Disease Support and Research Association. is located at:
9 Norton Avenue
Killarney Vale
2261 NSW, Australia
Tel: +1 02 43345785
E-mail: info@battens.org.au

The BDSRA in USA has established a directory of over 300 affected families, publishes a quarterly magazine called "The Illuminator" and holds an An annual conference in July with parallel sessions for medical practitioners, parents and siblings.
Further information about the American Association may be obtained by contacting:

Lance Johnston, Director
Email; bdsra1@bdsra.org

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For more detailed information on Batten's disease and/or for families support, please contact:

Operations Manager
Name: Vanessa Anderson
Email: vanessa@battens.org.au
Phone: 02 43345785

Vanessa co-ordinates the national office.

Memberships Officer
Name: Nicole Barnes
Email: fundraising@battens.org.au
Phone: 0407692366

Merchandise Purchase/Sales
Name: Linda McLachlan
Email: fundraising@battens.org.au
Phone: 0351992628

Publications Librarian
Name: Linda McLachlan
Email: info@battens.org.au
Phone: 0351992628

Secretary
Name: Jane Seychell
Email: bdsra@battens.org.au
Phone: 0298717547

Treasurer
Name: Ian Tweedie
Email: bdsra@battens.org.au
Phone: 0417041412

Web Master
Name: Dieter Benischke
Email: mail@categorycomputers.com
Phone: 0408080405