Family Conferences
The Australian Chapter of the Batten Disease Support and Research Assoc. Inc. presents the:
5th Australian Batten Disease
Family Conference
When: Friday 8th October to Sunday 10th October 2010
Where: Sea World Resort & Water Park, Gold Coast, Queensland
Accommodation: Sea World Resort holds a group booking rate per attached booking
form for attendees, further viewing of the venue at www.myfun.com.au
A Project of Hope.... The Chapter hopes that families, friends, doctors and researchers will came together in a wonderful and extraordinary way. Families travel from all states of Australia, parts of New Zealand and this year – perhaps even from the USA.
The Project aims to provide families and their friends, teachers and medical staff, affected or involved by this Disease with information, education and social interaction in various aspects of Batten Disease.
** The conference duration is Saturday and Sunday
Together with our BDSRA USA group, we organise for worldwide researchers to come here to share their knowledge, updating us on research and possibilities and hopes of trial treatments. A number of excellent speakers will travel from USA and Australia-wide to give each of us a greater understanding of this disease.
The families’ and their communities involved with Batten Disease will receive information and support, taking away with them..... knowledge, broadened networks and practical ways of managing.
Hence our second aim is having guest speakers who can form a panel group and answer the many questions about these special children that each attendee may be seeking.
Included in the conference days are workshops for specific forms of Batten Disease and most importantly, a ‘Ladies’ workshop (maybe a little champagne involved) and a ‘Mens Outing’ (which also probably involves a beer !)
** Parents especially - In your planning, please ensure that you are available on Friday afternoon for an orientation between families and carers.
** Saturday night is a social dinner for all guests with entertainment for all.
** The Children’s Program is operated during the conference period (Saturday and Sunday) with packed activities of fun as a way for the children to interact with each other.
** Sunday evening we hold a ‘Remembering Service’ in a nice location.
REGISTRATION:
Please complete the Registration Form – click here to download
and forward to the BDSRA together with your payment before 30/8/10.
ACCOMMODATION AT VENUE:
A group booking rate for this conference period has been provided by SeaWorld Resort for any attending guests. Bookings are made directly to the venue.
If you wish to make a booking, please complete this booking form to receive our group discounted rate - click here to download
Accommodation room choices are as follows: Accommodation choices at Sea World Resort:
Superior Room: $180.00 per night Family Room: $360.00 per night
2 X double beds 2 X double bed in 2 seperate & interconnecting rooms
(sleeps up to 4) (sleeps up to 8)
Studio Room: $215.00 per night International Room: $250.00 per night
2 X double beds plus kitchenette 2 X double bed (slightly larger room) plus a rollaway
(sleeps up to 4) (sleeps up to 5)
This Conference welcomes the public with an interest in Batten Disease. Attendees include carers, teachers, therapists, relatives of families and a range of health professionals.
BDSRA April 2010
