The Australian Chapter of BDSRA
Dates: 
31/03/2014
Location: 
Australia-wide

“Not any one activity will find a cure for Battens – it takes a  community of actions”

We are always hopeful for the National Batten Disease Awareness Day to be publicly noticed and some wonderful volunteers are carrying out these events – please support them wherever possible..

 

NSW

Murchison’s of Sydney Northern beaches present:

‘Bounce 4 Battens’ on Sunday 30th March

Jump in their castle, have some fun and share your bounce photo to social media

 

WA

1.       Pauline Sibley’s garden supports Battens:

Many open gardens and now ‘ABC Gardening Australia on Saturday 29th March 6pm, channel 2

OR Sunday 30th March at 1pm will highlight both.

 

2.       Sara’s an EveryDay Hero:

She has entered the May HBF Run for a Reason and that’s Battens

Donate at https://hbfrun2014.everydayhero.com/au/sara-1

 

3.       Leeming SHS Education Support Centre are:

Taking ‘Merchandise orders’ from all their staff/students/families

And creating awareness via their newsletter.

 

4.       Tahnee’s an EveryDay Hero too:

She has entered the May HBF Run for a Reason and that’s Battens

Donate at https://hbfrun2014.everydayhero.com/qu/tahnee-bell

 

SA

Lorraine Daley and friends are cooking up a storm:

‘Bunnings BBQ’ on 31st May

Helpers are encouraged and welcome.

 

QLD

Marsden State High School in Logan are guessing:

Staff and students can donate to any ‘3 large jars with different outcomes’

Eg. a teacher shaves his famous moustache,

Announced on Monday 31st March.