Meetings and Events

31 March - National Batten Disease Awareness Day. read more here ::

10 October - Australian Battens Family Conference . read more here ::

 

News Headlines

WA Football Battens Battle. View television commercial here ::

 

BDSRA Australian Chapter turns 15 years old and Launches its commemorative wine/port soon. read more here ::

 

Australian Schools join the awareness plight. read more here ::

 

Book launch in 2010 coming soon: "Perils of Motorcycling"

 

This website is still under construction and is a work in progress.  CUT Computers of Long Jetty NSW together with the BDSRA is revamping the site to include a full scope of services available, battens news updated constantly and important resources and networking links.  We thank CUT Computers for their generous efforts and they welcome feedback..

Thank you for your patience in the past year whilst maintenance had taken a holiday

2009 –  StemCells, Inc. USA demonstrates Protection Of INCL Neurological Function In Batten Mouse - read more at the Research page.

2/7/09
Australian Chapter produces and launches the Educational and Training DVD introduction to Batten Disease, “Three Journeys”.  This DVD can be purchased by emailing info@battens.org.au

 

1/1/2006
Human trial treatment for Gene Therapy is underway in the USA. Visit www.nathansbattle.com for more information.

11/12/2005
A study by the University of NSW is a major breakthrough. Click here to view article

1/11/2005
Stem Cell Inc. announces that Stem Cell treatment nears final approvals for a human trial”. More details can be found at Here

 

 

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