The Australian Chapter of Batten Disease Support and Research Association - BDSRA

News and Events

News:

1/1/2006
Human trial treatment for Gene Therapy is underway in the USA. Visit www.nathansbattle.com for more information.

11/12/2005
A study by the University of NSW is a major breakthrough. Click here to view article.

1/11/2005
Stem Cell Inc. announces that Stem Cell treatment nears final approvals for a human trial”. More details can be found at Here

24/3/2005:
This new website has been proudly prepared by the Australian Chapter, with all design and layout prepared by Daniel McDonagh of Newcastle, NSW. We thank you Daniel for your time, effort and dedication in bringing this wonderful source to the public.

11/3/2005
Posters have been kindly printed by Low Print, Coffs Harbour in NSW - thanks Phil for helping us meet our timelines.


Events:

Upcoming events:

June 06 - Memorabilia fund-raiser NOW ON EBAY
A surfboard signed by WCT and WCQ champions is now on ebay. Please visit the Auction here for your chance to win a one of a kind surf board while helping a great cause.

May 06 - Memorabilia fund-raiser for keen Surfers
A surfboard signed by WCT and WCQ champions; Mark Richards, Occy, Mick Fanning and Neco Padaratz, Just to name a few (Certificate of Authenticity provided with board) will be auctioned on Ebay Soon. Check out the board here (pdf) or here (html)
For more details please contact Vanessa Anderson

Past events:

The Climb of your Life for the Life of a Child
The Climb of Your Life for the Life of a Child" involved 64 volunteers from Australia-wide and New Zealand who climbed the Sydney Harbour Bridge together on the 2nd April 2006. Click here for photos and amazing results.

3rd Australian Batten Disease Family Conference
3rd Australian Batten Disease Family Conference Saturday 1st and Sunday 2nd October 2005 (9am- 5pm).
Click here for a Photo of the event

2nd Batten Disease International Conference in Australia:
The 2003 Battens Project of Hope...... 'Getting Together' at Sea World Nara Resort, Gold Coast of Queensland on the 18th & 19th October 2003.
Click here for information and photos.

First Australian Batten Disease Conference:
First Australian Batten Disease Conference at Darling Harbour, Sydney on 31st March & 1st April 2001.
Click here for information and photos.

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Site by Macca
© BDSRA 2005
Charity No. CFN 14877    ARBN 073 435 202    ABN 56 056 138 994